A Day in My Life with MG

A Day in My Life with MG 

My day starts with a pause.

Before my feet even hit the floor, I have to check in with my body. Is my arm trembling already? Can I lift my head off the pillow without the weight of exhaustion pulling me back down? Myasthenia Gravis doesn’t wait for an invitation—it decides how my day begins.

I sit on the edge of my bed, already calculating how much energy I can spend. Everything has a price. Showering? That’ll cost me. Washing my hair? That might mean I can’t make dinner later.

By the time I get dressed (which I usually have to rest during), my muscles feel like they’ve already run a marathon. And no, you can’t see it. That’s the thing about MG, it hides behind smiles and makeup and laughter. But it’s there.

Walking across a parking lot might make my leg give out. Holding a pen too long makes my hand shake. And some days, chewing food is exhausting. Yes, chewing. MG affects the communication between nerves and muscles, so everyday tasks become battles.

The heat? It’s my worst enemy. The second I step into the sun, I feel like I’m melting from the inside out. This summer, the nausea hits hard. Sometimes I step outside and feel sick instantly. Add that to the fatigue, and I’m down for the count before noon.

But I keep going.

I rest. I push. I cancel. I rearrange. I smile when I’m tired. I cry when no one sees. I learn to listen to my body even when it betrays me. And I carry on, because MG hasn’t taken my will to live fully—it’s just made me live differently.

This is my day. And this is why I speak up—for myself, and for others whose struggles are invisible too.

June is MG Awareness Month. Thank you for being here.