Summer is just beginning, and while most people are looking forward to sunshine and fun, I’m preparing for something else: managing myasthenia gravis as the heat rolls in.
This year, I’ve developed a new symptom—heat-induced nausea. The moment I step outside, I feel sick. It’s intense and only adds to the muscle weakness, fatigue, and migraines that MG already brings. Summer can be brutal when your body is already fighting to function.
June is Myasthenia Gravis Awareness Month, and even though we’re already halfway through, I want to share as much as I can the rest of the month to raise awareness. MG is rare and invisible, but it’s very real—and the more people understand it, the more compassion and support we can build.
So I’m pacing myself. I’m resting more, planning carefully, and choosing grace over guilt. This summer isn’t about doing it all—it’s about doing what I can, and being proud of that.
Here’s to a slower, softer summer—and to using my voice to spread awareness along the way.
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